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medical MS

Saw the doc and looked at the MRIs

Saw my neuro today. The MRIs were better than I had thought they’d be. Yes, there were a few new lesions in my head, but they were pretty small. The big one I had before on my spine has healed up to a large degree.Turns out there are more lower down on my spine, but I’m not sure if those are new or not.

So, it doesn’t look as though there has been much progression, WHEW! One thing that really stuck out in my mind was how one lesion can have such a large effect. When I had the first MRIs done, I was having some trouble walking even a half mile. Nowadays I can do a mile fairly easily. I might still weave a bit and stumble, but I can do it. That one lesion caused a lot of my problems. It occurred to me that another one could be just as bad, or worse…

So that cemented it for me. I am going to start on Tyssabri next month. It is a once a month infusion and it seems to have the best results of all of the MS medications out there. I am also going to try a medicine that is supposed to help send signals down to my lower extremities better. I’m hoping I’ll get some of my strength back with that.

My doctor had a good analogy for how he treats MS. He sees big things coming for MS in the future. So for now, what he wants to do is keep things from progressing so that I will be ready for the new treatments that come along. He wants me to stand there with my finger in the dike for as long as it takes to get an actual treatment. I’m OK with that. Let’s hope that those new treatments come along soon.

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