Not so much

I was recently up at my step father’s place. I had a good time, saw a baseball game, caught up with some friends and my step sister and her family. When I first got up there, she posed the typical “How’s it going?” question. I usually just gloss over that, there really isn’t much to say. I just shrug my shoulders and say “It’s going OK,” or some other banality. She nodded her head and said, “Yeah, just getting in touch with your body…”

That surprised me so I just said “yeah” in response. The more i think about it though, the more inaccurate that is. If anything, this disease is all about losing touch with my body. My lower legs and feet are kind of numb, but more importantly, they feel disconnected. I don’t always know where they are. The weakness I get in my legs are al about me telling them what to do, and they just don’t respond. I usually can’t feel my quads or other workings in my legs. All of this makes my balance a bit of a surprise and frequently it isn’t there at all.

So getting in touch with my body? No, not really. I wish it would send a postcard or something.

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