Category «MS»

Virtual reality

Had a dream that I was late for my monthly infusion by 3 hours. The clinic was actually closing and my nurse was totally wiped out. As I was trying to figure out what to do, I noticed she had fallen asleep in one of the chairs. Seemed like a good idea, so I dozed …

Surprise in PT today

Went to PT for the first time in two weeks and had a bit of a surprise. She tested my hip strength and they tested out as normal. We’ve been working on those for the past 5 months and the improvement seemed to come once I stopped doing PT for a bit. Hmmm. My therapist …

Another month

It’s official, I’ll be doing at least another month of physical therapy. I finally feel some muscles where I didn’t have any before, but my stamina just isn’t there. Certainly not enough for a whole day’s worth. It could be worse really. I am seeing some improvement, now we just need to speed that up.

One week in

I’ve been out of work for a week now. It has helped in a lot of ways. Mentally, I feel much better. The absence of constant stress of getting worn down at work has allowed me to start thinking clearly again.  I’ve only gone to two PT sessions so far but I can already tell …

6 weeks with no work

No, I’m not on vacation… I’ve gone onto short term disability to do another round of physical therapy. I need to build up my strength again. I tried working and doing physical therapy at the same time last time. Didn’t work out so well. The PT wore me out so it was difficult to work. …

Raising awareness

The “Kony” video has been circulating around. I haven’t watched it, the brief intro turned me off. It said something to the effect that the video wasn’t suggesting a solution, but simply raising awareness of the man and the awful things he has done. I don’t doubt for a second that he is truly awful, …

41!

I’ll be turning 41 tomorrow. My 40th year was really a bit of a blur. MS clouded my thoughts and made really lethargic for long periods of time but i think I’ve got it mostly under control now. My doctor explained MS like this, there are two ongoing issues with the disease, damage to the …

Physical Therepy

I’ve been going to physical therapy for a couple of weeks now. I already feel stronger. I don’t have the worrying weakness going down the stairs, and I can balance much better with my eyes open. Eyes closed is still a bit of an adventure. I’ve been doing an exercise where I walk heel to …

wow

Had my first physical therapy session yesterday. It was mostly an initial screening, seeing where I was and what I wanted to do etc. The physical therapist was happy with my general strength and flexibility. I kept trying to tell her that most of my problems don’t show up until I’ve been on my feet …

Saw the doc

When I went to the doc last, I wasn’t really having one of my good days, and it sounds like that clouded my perception of what happened and the advice I was given. They still haven’t gotten back the results of the JC virus antibodies test, but regardless of what it comes back as, I …